The Fostering Effective Diagnosis and Treatment for Underserved Populations with Bleeding Disorders Act (FED UP with Bleeding Disorders Act, H.R. 8794) aims to improve the diagnosis, treatment, and research of bleeding disorders, particularly among women and girls who are often underserved. The bill proposes a coordinated federal review of existing programs to enhance scientific research, healthcare provider education, access to care, and inclusion in clinical trials. Additionally, it calls for a national public awareness campaign to better recognize and address bleeding disorders in these populations.
The National Bleeding Disorders Foundation (NBDF) has expressed strong support for the FED UP Act, highlighting its potential to address longstanding challenges faced by women and girls with bleeding disorders. NBDF's Chief Operating Officer, Dawn Rotellini, stated that the legislation represents meaningful progress toward breaking down barriers and ensuring future generations receive the care and recognition they deserve. The bill is seen as a culmination of years of advocacy efforts aimed at improving awareness, diagnosis, and treatment for this underserved group.
As of now, there is no significant negative media coverage or criticism of the FED UP Act. Given its bipartisan sponsorship and focus on addressing healthcare disparities, it is likely to be well-received. However, potential concerns could arise regarding the implementation of the proposed initiatives, funding allocations, and the effectiveness of the awareness campaigns in reaching the targeted underserved populations.
The analysis of H.R. 8794, which focuses on increasing research and initiatives related to bleeding disorders in underserved populations, reveals no direct industry overlaps between the bill's subject matter and the sponsor Julie Johnson's top donor industries. While there is lobbying activity in the healthcare space, the specific donors listed do not appear to have a direct financial interest in bleeding disorders. The largest lobbying contributions come from entities like The GEO Group, Inc. ($80,000) and A.C.E. Consulting, which are not directly related to healthcare or bleeding disorders. Therefore, the potential for conflicts of interest appears minimal.
Organizations that lobbied on issues related to this bill's policy area.
| Client | Lobbying Firm | Amount |
|---|---|---|
| THE GEO GROUP, INC. | CHECKMATE GOVERNMENT RELATIONS | $80,000 |
| COPPER.CO | SOBBA PUBLIC, LLC | $36,000 |
| AMPL-ACTION FUND (FORMERLY ADVOCATES FOR MULTI-USE OF PUBLIC LANDS) | BIGHORN PUBLIC AFFAIRS GROUP | $20,000 |
| USIG DIGITAL | SOBBA PUBLIC, LLC | $15,000 |
| USIG DIGITAL | SOBBA PUBLIC, LLC | $15,000 |
| CATHOLIC CHARITIES | MASIELLO MARTUCCI HUGHES KULPA | $15,000 |
| PVS CHEMICAL SOLUTIONS | MASIELLO MARTUCCI HUGHES KULPA | $15,000 |
| ERIE COUNTY WATER AUTHORITY | MASIELLO MARTUCCI HUGHES KULPA | $15,000 |
| ARTPARK | MASIELLO MARTUCCI HUGHES KULPA | $10,500 |
| MHG TELCO, LLL | MASIELLO MARTUCCI HUGHES KULPA | $10,500 |
| ROSINA FOODS | MASIELLO MARTUCCI HUGHES KULPA | $9,000 |
| THE SALVATION ARMY | MASIELLO MARTUCCI HUGHES KULPA | $6,000 |
| A.C.E. CONSULTING | A.C.E. CONSULTING DBA A.C.E. CONSTRUCTION CONSULTING | undisclosed |
| A.C.E. CONSULTING | A.C.E. CONSULTING DBA A.C.E. CONSTRUCTION CONSULTING | undisclosed |
| THE GUTHRIE CLINIC | BUCHANAN INGERSOLL & ROONEY PC | undisclosed |
Source: Senate Lobbying Disclosure Act (LDA) filings, 2026
Top industries funding Julie Johnson, ranked by total contributions.
Source: OpenSecrets.org (Center for Responsive Politics)
